Get involved

Are you a parent or carer who:

  • would like to share your family’s story

  • wants to share your child’s words

  • has thoughts on the kind of DEE-SWAS research that matters most to you

Are you a researcher, clinician, educator, teacher’s aide, psychologist, occupational therapist, speech pathologist, support worker, or other everyday expert who:

  • can share evidence-based strategies

  • would like to point to published research

  • wishes to help improve quality of life for children with DEE-SWAS, or those who have reached adulthood and now live with the consequences.

Can you see ways to make this website more accessible, useful, and accurate for families globally - not just in the US, Australia, and the UK?

If so, please email me at melanie@voicesofdeeswas.org

Children are able and willing to share their own experiences, but this requires a shift in how adults think - seeing children as capable individuals with meaningful perspectives on their own lives.