Advancing understanding of the unmet social, emotional, educational and physical needs of children currently living with:

• Developmental and Epileptic Encephalopathy with Spike-Wave Activation in Sleep (DEE-SWAS)

• Epileptic Encephalopathy with Spike-Wave Activation in Sleep (EE-SWAS)

• Continuous Spike-Wave in Sleep (CSWS)

• Electrical Status Epilepticus in Sleep (ESES)

• Landau-Kleffner Syndrome (LKS)

Drawing on lived experience and research insights to help clinicians, therapists, researchers and educators better understand - and improve the quality of life of children and their families.