Stories from children, adults and families
The goal over time to publish interviews with children, adults and families with lived experience of DEE-SWAS, EE-SWAS, Landau-Kleffner syndrome (LKS), Continuous Spike-Wave in Sleep (CSWS) and Electrical Status Epilepticus in Sleep (ESES). Please get in touch if you would like to share your story.
Landau-Kleffner Syndrome: Where do we fit in?
By Andrea Tyler - My daughter has a rare brain disorder, called Landau-Kleffner Syndrome. (LKS) By all technical definitions she is not considered "deaf" or "hard of hearing". She has lost the ability to speak verbally, does not process spoken language or environmental sounds, and appears most of the time to be completely mute. Read Andrea’s story: https://www.handsandvoices.org/articles/fam_perspectives/V8-2_landaukleffner.htm