Rosie's Story: Navigating Pediatric Epilepsy Treatment and the Rare Diagnosis of ESES

Rosie Tomes experienced her first seizure when she was seven years old just days before her family moved from Missouri to San Antonio. What began as a frightening medical emergency would lead her parents, Shawna and Jonathan, to discover that Rosie has a rare and complex form of epilepsy that affects her ability to move, speak and learn.

Read the full story: https://www.christushealth.org/connect/your-health/childrens-health-and-wellness-stories/rosie-pediatric-epilepsy-eses-diagnosis

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Misdiagnosed, a 5-year-old boy stopped talking. The culprit: a rare treatable brain disorder, shares neurologist

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Epilepsy fails NDIS funding criteria because it's not considered a disability, and these families are suffering