Play
Listening out loud - communicating with joy - this September 2026 webinar by Rare Birds Foundation and DEEP is to help people connect with loved ones who live with Developmental Epileptic Encephalopathies (DEEs). “Centering joy and play, we discussed 4 ways a non-speaking person might communicate and how we can use the principles of clowning and improv to say "Yes, and..." when speaking with a non-speaker.”
Play and positive behaviour - a Young Epilepsy (UK) resource. "Play is an essential part of every child’s development, offering opportunities for learning, creativity and social growth. For children with epilepsy, play can also serve as a powerful tool to encourage positive behaviour, build resilience and foster self-confidence.”
Mental health
Mental health intervention for a child with D/EE-SWAS - evidence for treatment of mental health problems in children with DEEs is sparse. A parent training intervention improved mental health in a child with DEE-SWAS. Parents reported that the intervention helped with specific behaviours of concern.
Development
Abilities and behaviour in Landau Kleffner Syndrome - in addition to language, children with Landau Kleffner Syndrome (LKS) often experience difficulties in other areas of development. These areas can impact on a child’s ability to learn and interact with the world around them, as well as their psychological well-being and self-esteem. This page discusses key areas of difficulty in relation to learning, motor skills and behaviour. Great Ormond Street Hospital for Children (UK).
Better health communication and coordinated care
Rare Condition Passports - practical tools for people living with rare conditions and their families to share important information they want others to know about their health, care needs and preferences.